LM Support Groups & Useful Resources

 

FaceBook Support Groups

Laryngomalacia, Tracheomalacia, Bronchomalacia in Australia – (@LTBMAustralia) – https://www.facebook.com/groups/212297065522038/

Laryngomalacia Support Group – https://www.facebook.com/groups/4225449754/

Love for Malacia Babies Group – https://www.facebook.com/groups/loveformalaciababies/

Coping with Laryngomalacia – https://www.facebook.com/pages/Coping-With-Laryngomalacia/138719706160680

 

Useful Resources (Source: Leah Lefler. Reposted with her permission)

Children and C-Pap: Adjusting to Continuous Positive Airway Pressure – Cpap use is not common in children, and it can be hard to find practical advice for helping children to adjust to Cpap therapy. A basic guide for starting Cpap therapy in children with sleep apnea.

Sleep Studies in Children: What to Expect – What to expect when your child has a sleep study – how the sleep study is performed, our personal experience with pediatric sleep apnea.

Fundoplication Resources & Information (Source: Leah Lefler. Reposted with her permission)

Parent2Parent, a forum for children with complex medical needs, severe reflux, or fundoplications. There are separate forums for each type of medical situation, and a wealth of knowledge shared between parents who have gone through it: http://parent-2-parent.com/forums/forum.php

10 Questions Every Parent Needs to Ask Before a Fundoplication, Complex Child Magazine. There are some really great questions that parents should ask doctors regarding this procedure. http://www.articles.complexchild.com/00009.pdf

Solutions for Retching, Complex Child Magazine: some children with a fundoplication will retch, and this article covers some of the ways parents can help a child in this situation. http://www.articles.complexchild.com/00010.pdf

Outcomes of Laparascopic vs. Open Fundoplications, Official Journal of the American Academy of Pediatrics: http://pediatrics.aappublications.org/content/early/2011/04/18/peds.2010-1198.abstract

Surgery for Pediatric GERD, by the PAGER organization: http://www.reflux.org/reflux/webdoc01.nsf/(vwwebpage)/surgery.htm?opendocument

Anti-Reflux Surgery Outcomes in the Pediatric Population, the American Academy of Gastroenterology: http://www.nature.com/ajg/journal/v100/n8/full/ajg2005328a.html